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Join Heart of a Giant at the Heart Walk!

Hi Everyone: Yes, it is that time of the year. Just a little more than 60 days to go for the 2020 Boston Heart Walk. This year would be our 4th participation in a row supporting the work of the American Heart Association to improve the health of Greater Boston.

We are excited to officially kick off the drive for this year’s Heart Walk, which will be the biggest ever. The event is moving online. Everyone can join from anywhere and be part of this passionate movement. […]

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amplifying patient voices

Facing my mortality

“What’s your deepest fear?” is a question I often ask my good friends. With this single question I get to know so much about them, just listening to what s/he responds with and more so, the way they would answer. Death is a recurring theme I hear in the replies, either one’s own death or that of a loved one or someone influential in our life. I too consider death as a big one, but my answer to ‘what’s your deepest fear?’ is unfulfilled potential. […]

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Meet the “Star the Post” Feature

The Star the Post Animation – In March, I set out to refresh the Heart of a Giant blog that I had been running for close to 3 years. I teamed up with a few friends to guide me through the process. I opted for a cleaner and more modern theme to accommodate the new design and a handful of plugins for a variety of new features. […]

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amplifying patient voices

COVID-19 Logs: Getting back to running

Summer got here, but my body was not ready. Also, my scale decided to start bugging and show me some numbers I couldn’t accept. So, we had a little squabble. In any case, I had no good excuses – not my illness, not the pandemic, nothing… It was time to get a grip and get back on the tracks, so, did I, three weeks ago, on Monday. After a week, I manage to shed 8lb and keep them off.

Why am I getting back to running? My body needed a tougher challenge in terms of exercise. […]

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amplifying patient voices

Publication Highlights: My Medical Care Team

Like with teachers, how do you thank your medical caregivers? How to thank the good folks that saved your heart and keep it beating? It is an impossible task… To me, the best you can do is to write the best, most cool article about them. Please find the article I recently published at Heart.Failure.Net. Read Here.

This will not be enough but at least it would put a small smile on their faces. My hope is that – that one happy second would lead to more happy minutes, more happy days… […]

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It is now Birthday Season…

It is Birthday Season, we suggest that you wear your favorite outfits and just be happy!

July is our Birthday Season. Big brother turned 6 three weeks ago and the Twins turned 2 last week. We are grateful and thankful to our International village, from Thionck Essyl (in Casamance) to Manantali (in Mali), Bamako, Dakar, Johannesburg, to Montserrat, Boston to Paris, and beyond… and of course, YOU. 2020 has been a particularly challenging year for everyone. We hope that everything gets better from here and onwards. […]

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amplifying patient voices

Listen to my heartbeat with the LVAD

In this video, I share the sound of my heart with an animation. This is the beat that is keeping me alive, and still thriving. I hope you would enjoy it as much as we had fun putting it together. Enjoy!

Some say that it sounds like an arcade, a video game and others say that it sounds like a disco. What’s your take? Let me know in the Comments or email. Also, please feel free to share. […]

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amplifying patient voices

COVID-19 logs: navigating the day-to-day

How does one navigate day-to-day life with heart failure during this pandemic? 

In adjusting to new aspects of day-to-day life, which include remote working from home, with everyone at home, and reduced time spent outside the house, I looked at several changes in my routine.

1. Just get up and start the day. 

The way one wakes up in the morning has a big impact on the rest of the day. So, one approach I have designed for myself is, I try to get out of bed based on the time I planned the evening before. […]

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amplifying patient voices

2020 Father’s Day (AP News)

Happy Father’s Day!

We have had the honor to be a part of a great story by Leanne Italie (of the Associated Press – AP News). You can read the article here.

We are thankful to Shelly at Abbott PR+Media for making this happen and for all their support. Grateful and highly appreciative.

I appreciate this article a lot. It is the best Father’s gift ever! Now the kids and their mom are off the hook 😉. #Daddyoftheyear. […]

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