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Welcome to the Blog!

Early in the year, Keri Wiginton, a health writer for WebMD, reached out to me. She wanted to tell the story of how someone with heart failure made lifestyle changes to help manage their condition. Who better than the Heart of a Giant himself 😉? After a quick phone call, we agreed that I was a good fit, and here is the excellent piece that was produced. Check it out!
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Join us as Bouba speaks with Jazmine and Tawana about Evelyn Charrisse, the ladies’ mother and sister-in-law. Unfortunately, Evelyn, also known as “Charrisse,” passed away, but this episode will help you understand the highs and lows of caring for someone with heart disease. Episode 4 – Despite sharing tales of emergency hospital visits, Jazmine and Tawana never forget to mention how determined Charrisse was to make the most of life. Charrisse had a will to enjoy life. Everyone could feel that energy. Bouba felt the same way when meeting Charrisse for the first time. He appreciated her positive energy and independence. Everyone shares the lessons they learned from witnessing Charrisse live a full life in this conversation.
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We did a video project last Fall with a great team from Living in the Light for Tenaya Therapeutics. Thank you so much; we had a blast, as you can see in the pictures. The photos are magnific, and the shooting experience was terrific. I wish to work again and again with
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Hi, I am Somaneh Bouba. I come from Mali and Senegal. I was a high-flying engineer and social entrepreneur working on my African Dream when I found myself having to stay in the USA with my wife and sons to receive life-saving heart treatment.

I am living with an advanced heart disease caused by a congenital heart defect. I lived with the risk of sudden cardiac arrest without being aware for a long time. Despite years of therapies, multiple events, milestones, locations… In 2017, I underwent open-heart surgery to implant an LVAD pump inside my heart. The LVAD pump is helping my heart function while I wait for a heart transplant.

Here, I share an unfiltered account of my lived experience with my illness and the support system that helps me live a healthy life quality, be successful, and even aspire to self-actualization. I also write on how I still have faith in life, hope for tomorrow, and dreams for the future.

I blog as a patient because I firmly believe it is critical that the patient’s point of view is made more relevant and informs the improvement of therapies and healthcare systems.

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