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Living with Heart Disease Ep 15: Navigating Personal Goals and Health Challenges with Jodie Hall-Holit

In this episode of the Living with Heart Disease podcast, host Bouba welcomes guest Jodie Hall-Holit, who shares her journey with congestive heart failure. Jodie reveals that she was diagnosed at 19, shortly after giving birth to her son. She explains her challenges, including being misdiagnosed before finding the proper medical support. Tune in to hear Jodie's inspiring story of resilience and strength in the face of heart disease.
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Empower Series session: Heart Failure – Your Guide to Your Journey

Hello Heart of a Giant, I invite you to join us at the next Empower advocacy session organized by partner organizatioins on Wednesday, August 23. I will be part of the Patient Panel for a Moderated Discussion about our experiences with Heart Failure...
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Publications

My submissions for Health Union's Heart-Failure.Net that have been published to date:
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Heart of a Giant: Getting back from the transplant.

Hi! I am filled with excitement and gratitude to reach out to you all today. Believe it or not, last week marked the 7th month since my heart transplant. With every passing day, I am reminded of the immense power of the human connection and our ability to overcome any obstacle that comes our way. We are eternally grateful for this privilge for a quality life and for the love and support that have surrounded us every step of the way.
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ALL BLOG POSTS

Hi, I am Somaneh Bouba. I come from Mali and Senegal. I was a high-flying engineer and social entrepreneur working on my African Dream when I had to stay in the US with my wife (a born and bred Bostonian) and sons to receive life-saving heart treatment.


I live with an advanced heart disease caused by a congenital heart defect. I lived with the risk of sudden cardiac arrest without being aware for a long time. Despite years of therapies, multiple events, milestones, and locations. In 2017, I underwent open-heart surgery to implant an LVAD (Left Ventricular Assist Device) pump inside my heart. The LVAD pump helped my heart function while I waited for a heart transplant.

After years of waiting, I received a heart transplant in October 2022. The procedure was successful, and my recovery has been excellent so far.

Here, I share an unfiltered account of my lived experience with my illness and the support system that helps me live a healthy quality of life, be successful, and even aspire to self-actualization. I also write about how I still have faith in life, hope for tomorrow, and dreams for the future.

I blog as a patient because I firmly believe it is critical that the patient’s point of view is made more relevant and informs the improvement of therapies and healthcare systems.

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