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From Patient To Person by Living in the Light (For Tenaya Therapeutics)

We did a video project last Fall with a great team from Living in the Light for Tenaya Therapeutics. Thank you so much; we had a blast, as you can see in the pictures. The photos are magnific, and the shooting experience was terrific. I wish to work again and again with
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Episode 1 – With Melany – Heart Failure or Heart Disco?

Receiving a heart disease diagnosis throws you into a winding journey of information. Suddenly there’s a lot to catch up on, and while this can seem daunting at first, you start to find a rhythm as you learn. Our talk today focuses on what is helpful to know earlier in the journey so you can ease into a rhythm of your own more quickly.
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Publications

My submissions for Health Union's Heart-Failure.Net that have been published to date:
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Today marks my 5th year with my VAD

Today is my LVAD anniversary (VADiversary). On 11 January 2017, the team at Brigham implanted an LVAD inside my heart to help it function better while I wait for a new heart. It's been 5 years. Wow!
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2021 Boston Heart Walk: Team HG

Our Boston Heart Walk 5.0 is done! Team Heart of a Giant, We did it again!
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HG Heart Walk Postponed: New Date – Sat 6 Nov

The Rain date is now Saturday 6 Nov, and the location and time remain the same. Please help spread the word via phone, social media, and any other way possible. Please get in touch with me if you have any questions.
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New Date: Our Plans for the Heart Walk

Here are details for the day and the week of the heart walk. We look forward to walking with you, and the rest of Team Heart of a Giant.
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Team Heart of a Giant’s Plans for the Heart Walk

Here are details for the day and the week of the heart walk. We look forward to walking with you, and the rest of Team Heart of a Giant.
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The 757 Renaissance Man on his journey with the LVAD

In our next episode of Living with Heart Disease, we will be talking to fellow LVAD-enabled man Shawn Connors. Shawn is a widow/single father, computer nerd, gamer, Christian, sneakerhead, and foodie.
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Our favorite family joke

I have decided to share a few of my notes from last year, 2020. It feels like we are under a stress test; our resilience tested to its limit. At the same time, we need the habits and coping mechanisms we have developed over the years to navigate through the pandemic, survive and come out hopeful about the future.
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