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With Somaneh Bouba


Welcome to Living with Heart Disease, a Heart of a Giant production.

Is it possible to live a longer quality of life after a heart disease diagnosis? – Listen to the patients, support systems, and care providers who have resolved to become healthier both physically and mentally. We share the challenges and the triumphs. Discover what it really means to survive and thrive with a heart condition.

Amplifying Patient Voices through Unfiltered Conversations with Inspiring Voices.​

Living with Heart Disease is recorded LIVE monthly. Bouba facilitates unfiltered conversations with inspiring voices from all around the world. Attendees can also participate and ask questions during the meeting. Besides, the values of positivity, inspiration, and good humor are emphasized!

Next Episode Release


Sep 03, 2022

Episode 9 - The Better Half of Heart of a Giant Speaks on LWHD

Anyone facing a heart journey knows how much a support system makes life easier. The core of our support system is often our spouses and life partners. Our talk today is about the better half of Heart of a Giant.

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Aug 16, 2022

Episode 8 - Leading Heart Health Advocacy

People feel inspired when you talk about the topics you care about with passion. More so, people feel moved to take action when they see your dedication. Advocacy can show the tangible changes that your efforts make, and start a ripple effect of positive action. Our talk today is about leading heart health advocacy.

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Aug 03, 2022

Episode 7 - The 757 Renaissance Man on his journey with the LVAD

We are more than just heart failure. We have heart failure, but it is not a limit on who we are as people. We are multitalented and dimensional. Without a doubt, we should enjoy our lives. Our talk today is about living with humor and giving life your all.

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Jul 16, 2022

Episode 6 - Finding the courage and passion to live with heart failure

Sharing your story and building a community along the way is impactful. Your journey can be filled with excitement, empathy, resilience, and joy. Every time you make a new connection, you’ll realize that you never know who your story will resonate with. Our talk today is about finding the courage and passion to live with heart failure.

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Jul 03, 2022

Episode 5 - Life with an LVAD while waiting for a heart transplant

Heart disease can change our physical health, but how often do we address the impact heart disease has on our identity? Part of our heart health journey is about rebuilding. We change our view of our identity and the role we play in the lives of our loved ones. Our talk today features stories about managing the physical and mental challenges of heart disease.

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Jun 16, 2022

Episode 4 - Caring with a Big Loving Heart

Some people light up an entire room with their presence. They are the ones who bring love and laughter wherever they go. One interaction with them is unforgettable. People who make the most of life inspire everyone else to do the same. Our talk today celebrates the contagiously energetic life of Evelyn Charrisse McRae.

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Jun 03, 2022

Episode 3 - Patient Education and Research

Doesn’t it feel great to speak with someone who understands you? It’s common for people to connect with someone who has a similar lived experience. Through advocacy, people can connect; and educate each other. Most importantly, they can empathize with one another. Our talk today creates an open dialogue for patient education and research in the heart condition community.

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May 16, 2022

Episode 2 - Pretty Lady vs. Heart Failure

Instinct is often the best guidance we can have. For an invisible disease, the patient has the most significant insight into what’s going on with their body. Learning to trust those hints can be lifesaving in times where professional counsel and the patient’s instinct don’t match up. Our talk today focuses on not being afraid to trust your voice in leading your heart failure journey.

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May 03, 2022

Episode 1 - Heart Failure or Heart Disco?

Receiving a heart disease diagnosis throws you into a winding journey of information. Suddenly there’s a lot to catch up on, and while this can seem daunting at first, you start to find a rhythm as you learn. Our talk today focuses on what is helpful to know earlier in the journey so you can ease into a rhythm of your own more quickly.

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What People Say

“Bouba, A quick note to say, Thanks! I am still on cloud nine after hearing Mel's story on Saturday. What you are doing is helpful, wonderful, and exciting. See you soon...”
Anne B.
Heart Transplant Survivor
"Hello Bouba - Thank you again for joining the XYZ meeting today and sharing your life. I was touched by your optimism and your quote about understanding the patient's POV.”
Jason, A
Sr. Manager, Medical Devices Company
“I’ve been enjoying your posts and blog and have been following your story. I wanted to let you know how much you inspire me and give me hope.”
Heart Patient Parent

Meet Your Host

Somaneh Bouba was an engineer and social entrepreneur from Mali and Senegal when he found himself having to stay in the U.S. with his wife and young son to receive life-saving heart treatment for a rare congenital heart defect.

The next year, Bouba underwent open-heart surgery to implant an LVAD pump inside his heart to help his heart function while he waits for a heart transplant. Bouba and his wife, Désirée, now live in Boston, Massachusetts, and in 2018 they welcomed twin boys to their family.

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