LIVING WITH HEART DISEASE
Welcome to Living with Heart Disease, a Heart of a Giant production.
Is it possible to live a longer quality of life after a heart disease diagnosis? – Listen to the patients, support systems, and care providers who have resolved to become healthier both physically and mentally. We share the challenges and the triumphs. Discover what it really means to survive and thrive with a heart condition.
Amplifying Patient Voices through Unfiltered Conversations with Inspiring Voices.
Living with Heart Disease is recorded LIVE monthly. Bouba facilitates unfiltered conversations with inspiring voices from all around the world. Attendees can also participate and ask questions during the meeting. Besides, the values of positivity, inspiration, and good humor are emphasized!
Next Episode Release
Jun 16, 2022
Episode 4 - Caring with a Big Loving Heart
Some people light up an entire room with their presence. They are the ones who bring love and laughter wherever they go. One interaction with them is unforgettable. People who make the most of life inspire everyone else to do the same. Our talk today celebrates the contagiously energetic life of Evelyn Charrisse McRae.
Jun 03, 2022
Episode 3 - Patient Education and Research
Doesn’t it feel great to speak with someone who understands you? It’s common for people to connect with someone who has a similar lived experience. Through advocacy, people can connect; and educate each other. Most importantly, they can empathize with one another. Our talk today creates an open dialogue for patient education and research in the heart condition community.
May 16, 2022
Episode 2 - Pretty Lady vs. Heart Failure
Instinct is often the best guidance we can have. For an invisible disease, the patient has the most significant insight into what’s going on with their body. Learning to trust those hints can be lifesaving in times where professional counsel and the patient’s instinct don’t match up. Our talk today focuses on not being afraid to trust your voice in leading your heart failure journey.
May 03, 2022
Episode 1 - Heart Failure or Heart Disco?
Receiving a heart disease diagnosis throws you into a winding journey of information. Suddenly there’s a lot to catch up on, and while this can seem daunting at first, you start to find a rhythm as you learn. Our talk today focuses on what is helpful to know earlier in the journey so you can ease into a rhythm of your own more quickly.
What People Say
Meet Your Host
Somaneh Bouba was an engineer and social entrepreneur from Mali and Senegal when he found himself having to stay in the U.S. with his wife and young son to receive life-saving heart treatment for a rare congenital heart defect.
The next year, Bouba underwent open-heart surgery to implant an LVAD pump inside his heart to help his heart function while he waits for a heart transplant. Bouba and his wife, Désirée, now live in Boston, Massachusetts, and in 2018 they welcomed twin boys to their family.
Recent Blog Posts
My WebMD Article – Lifestyle Changes I Had to Make With Chronic Heart Failure
Early in the year, Keri Wiginton, a...
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Episode 4 – Caring with a Big Loving Heart
Join us as Bouba speaks with Jazmine...
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From Patient To Person by Living in the Light (For Tenaya Therapeutics)
We did a video project last Fall...
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