alltimepopular – Heart of a Giant

From Patient To Person by Living in the Light (For Tenaya Therapeutics)

June 7, 2022

We did a video project last Fall with a great team from Living in the Light for Tenaya Therapeutics. Thank you so much; we had a blast, as you can see in the pictures. The photos are magnific, and the shooting experience was terrific. I wish to work again and again with

May 2022 Updates: I Need To Live

May 24, 2022

Sometimes I wake up in the morning, look in the mirror, look at myself, and say to myself, "Wow! This heart still beats; I am still alive. That's Right, and We have not done all that surviving, to yield" Then I do my Black Panther come back. "I never yielded... as you can see, I am not dead". I am reminded that I am still alive. … Today, I thought I'd give you a brief update on what has been going on with my health, life, work, and social enterprise.

Publications

February 8, 2022

My submissions for Health Union's Heart-Failure.Net that have been published to date:

Today marks my 5th year with my VAD

January 11, 2022

Today is my LVAD anniversary (VADiversary). On 11 January 2017, the team at Brigham implanted an LVAD inside my heart to help it function better while I wait for a new heart. It's been 5 years. Wow!

Thank you for supporting the Heart Walk!

October 27, 2020

It is official, Team Heart Of A Giant is made up of All-Star folks with real heart! For this year’s Boston Heart Walk, we came out and walked! From Boston to Bamako, Dakar, to Paris, Singapore, Reims, Atlanta, Plymouth, Warsaw, Niaguiss, Ziguinchor, Casamance, Pretoria, Johannesburg, Pretoria, Cape Town, Beyrouth, Milton, and more….[...]

#34

October 13, 2020

..., So, here I am, …Just a few hours before midnight. Before my 34th birthday. [...]

Facing my mortality

August 17, 2020

“What’s your deepest fear?” is a question I often ask my good friends. With this single question I get to know so much about them, just listening to what s/he responds with and more so, the way they would answer. Death is a recurring theme I hear in the replies, either one’s own death or that of a loved one or someone influential in our life. I too consider death as a big one, but my answer to ‘what’s your deepest fear?’ is unfulfilled potential. [...]

COVID-19 Logs: Getting back to running

July 28, 2020

Summer got here, but my body was not ready. Also, my scale decided to start bugging and show me some numbers I couldn't accept. So, we had a little squabble. In any case, I had no good excuses - not my illness, not the pandemic, nothing... It was time to get a grip and get back on the tracks, so, did I, three weeks ago, on Monday. After a week, I manage to shed 8lb and keep them off.

Why am I getting back to running? My body needed a tougher challenge in terms of exercise. [...]

Publication Highlights: My Medical Care Team

July 25, 2020

Like with teachers, how do you thank your medical caregivers? How to thank the good folks that saved your heart and keep it beating? It is an impossible task... To me, the best you can do is to write the best, most cool article about them. Please find the article I recently published at Heart.Failure.Net. Read Here.

This will not be enough but at least it would put a small smile on their faces. My hope is that - that one happy second would lead to more happy minutes, more happy days... [...]

It is now Birthday Season…

July 21, 2020

It is Birthday Season, we suggest that you wear your favorite outfits and just be happy!

July is our Birthday Season. Big brother turned 6 three weeks ago and the Twins turned 2 last week. We are grateful and thankful to our International village, from Thionck Essyl (in Casamance) to Manantali (in Mali), Bamako, Dakar, Johannesburg, to Montserrat, Boston to Paris, and beyond... and of course, YOU. 2020 has been a particularly challenging year for everyone. We hope that everything gets better from here and onwards. [...]

Tag: alltimepopular